EEG Testing at UCLA - Last Day

April 21, 2008

I woke up this morning and went down to the cafeteria to get my coffee. When I got back to the room, the nurse who was watching Aiden said the neuro team had come by to tell me we get to go home today. Aiden was happy to get the electrodes off.

I was told Aiden had a seizure one night while I was sleeping and it showed up on the EEG. He also had a sub-clinical seizure that can only be seen on an EEG because there are no physical signs. The EEG showed the seizures were coming from the right side only, like we hoped. This means Aiden will most likely be a candidate for the hemispherectomy. The neuro team will get together with the surgeon and they will all discuss what the next step will be. They will consider factors like his age, developmental delay and whether or not they think the surgery will benefit Aiden.

I'm glad to be home but a little uncomfortable because Aiden has been completely off his anti-seizure meds for 4 days. When we got home, Aiden was very happy and playful but he had a 6 minute seizure when he woke up from his nap. He was sitting on the floor playing and he just slowly tipped forward. When I grabbed him, there was a lot of drool coming out of his mouth and his eyes were darting. He's back on his regular medication schedule now that we're home so I hope it kicks in fast and stops these seizures.

Aiden has a follow-up appt in two weeks and then we'll schedule an MRI as an outpatient procedure. By then I should have more information on what the neuro team has discussed.

EEG Testing at UCLA - 6th Day

April 20, 2008

Jason came to the hospital yesterday to be with Aiden and I. He spent the night with us and I woke up early to go home to shower and do some laundry. While I was gone, Aiden had a seizure and it was captured on the EEG. My mom went back to the hospital with me so she could watch Aiden while Jay and I had lunch together. We all spent some time together and then mom and Jay went back home.We are one step closer to getting out of the hospital.

EEG Testing at UCLA - 4th Day

April 18, 2008


Day four and still no seizures. They've lowered his dosage of the anti-seizure medication from 7 pills a day to 1 a day in hopes that a seizure will happen soon. Ideally, they want to see 3 seizures, run an MRI and then we get to go home.

It's strange that Aiden was having seizures almost every day at home and then we get here and they stopped.

EEG Testing at UCLA - 1st Day

April 15, 2008

Today is our first day at UCLA. Aiden's all hooked up to the EEG/telemetry monitor. He's got a video camera on him at all times to capture his seizures. We'll be here for a few days or until we get enough seizures captured. Our room is so small. There's barely enough room to move in here. There is no bed for me so I'll have to curl up on Aiden's bed.