April 21, 2008
I woke up this morning and went down to the cafeteria to get my coffee. When I got back to the room, the nurse who was watching Aiden said the neuro team had come by to tell me we get to go home today. Aiden was happy to get the electrodes off.
I was told Aiden had a seizure one night while I was sleeping and it showed up on the EEG. He also had a sub-clinical seizure that can only be seen on an EEG because there are no physical signs. The EEG showed the seizures were coming from the right side only, like we hoped. This means Aiden will most likely be a candidate for the hemispherectomy. The neuro team will get together with the surgeon and they will all discuss what the next step will be. They will consider factors like his age, developmental delay and whether or not they think the surgery will benefit Aiden.
I'm glad to be home but a little uncomfortable because Aiden has been completely off his anti-seizure meds for 4 days. When we got home, Aiden was very happy and playful but he had a 6 minute seizure when he woke up from his nap. He was sitting on the floor playing and he just slowly tipped forward. When I grabbed him, there was a lot of drool coming out of his mouth and his eyes were darting. He's back on his regular medication schedule now that we're home so I hope it kicks in fast and stops these seizures.
Aiden has a follow-up appt in two weeks and then we'll schedule an MRI as an outpatient procedure. By then I should have more information on what the neuro team has discussed.