September 5, 2008
My friend Elsie had an idea to help raise funds for the Sturge-Weber Foundation. So she, and the girls at Villagio Salon, sold raffle tickets for prize gift baskets. There were 6 different baskets. The contents of the gift baskets were donated by local companies like Trader Joe's, Villagio Salon, Village Kitchen etc. They drew 6 raffle winners tonight. Elsie told me that they raised over $1,000. Her son even went door-to-door and asked for donations. She's going to donate the money on Aiden's FirstGiving website which will go directly to the Sturge-Weber Foundation. I just want to say "Thank you" to all who contributed to Elsie's fundraising efforts. And thank you Elsie for spreading the word about Sturge-Weber to everyone who comes in the salon.
A few months ago, in an effort to raise awareness for Sturge-Weber, I emailed Ragdoll, the creator of shows Teletubbies and Boohbah (Aiden's favorites). I attached a link to Aiden's website and explained the need for awareness of this rare syndrome. I was lucky enough to get a reply from a lady named Tina who was very touched by Aiden's story. She decided to donate some merchandise to help raise awareness for Sturge-Weber and she shipped me two huge boxes of Teletubby and Boohbah items. I told the Sturge-Weber Foundation about the generous donation and we are still trying to decide the best way to use these items which include: Stickers, Ornaments, Purses, Notepads, Buckets, Postcards, Gift Wrap, Keepsake Boxs, Figurines, Headbands, Dolls, Tee Shirts, Posters, Balloons and Beach Balls. Thank you, Tina!!!